神戸大学附属図書館デジタルアーカイブ
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https://doi.org/10.24546/81010637
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2024-04-26
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81010637 (fulltext)
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メタデータID
81010637
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open access
出版タイプ
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タイトル
Investigation of the Treatment and Living Assistance Needed by Patients with Young-Onset Parkinson's Disease
著者
Iwasa, Yumi ; Saito, Izumi ; Fujii, Chieko
著者名
Iwasa, Yumi
著者ID
A1222
研究者ID
1000010195977
KUID
https://kuid-rm-web.ofc.kobe-u.ac.jp/search/detail?systemId=1e32654e3736e97f520e17560c007669
著者名
Saito, Izumi
齋藤, いずみ
サイトウ, イズミ
所属機関名
保健学研究科
著者名
Fujii, Chieko
収録物名
The Kobe journal of the medical sciences
巻(号)
64(5)
ページ
180-188
出版者
神戸大学医学部
Kobe University School of Medicine
刊行日
2018
公開日
2019-03-01
抄録
Purpose: This study assessed the symptoms, treatment, social systems use, and perception of living conditions of patients with young-onset Parkinson’s disease (YOPD), and investigated the support needed by them. Method: Among the 252 people who completed our questionnaire, we defined YOPD patients as those diagnosed as young onset or those with onset at ≤40 years. The data were compared with others. Results: There were 24 patients with YOPD (9.5%) (average age: 61.7 years), with an average disease duration 6.4 years longer (p < 0.01) and time until diagnosis 0.7 years longer (p < 0.1) than those of other patients. This group took 1.6 times more types of medicines, and time to their next appointment was 8.6 days shorter than that of other patients (p < 0.05). Patients with YOPD had more pulsive walking and more sweating (p < 0.05), and more motor fluctuation (p < 0.1). More patients with YOPD had a physical disability certificate but felt they were not obtaining the required services (p < 0.05). 45.0% of the YOPD group wanted to work more, more used information and communication equipment (p < 0.05), and more felt their medications were adequate (p < 0.1). Conclusions: Increased awareness of YOPD is needed. YOPD patients have motor fluctuation because of the longer disease duration. Thus, the support of doctors and nurses, and frequent examination visits, are indispensable for controlling symptoms to achieve middle age developmental tasks. Increased support for care-giving, leisure-time activities, and work is also necessary and may help maintain the desire to work in this group.
カテゴリ
保健学研究科
The Kobe journal of the medical sciences
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64巻
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64巻5号(2018)
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資源タイプ
departmental bulletin paper
言語
English (英語)
ISSN
0023-2513
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NCID
AA00711740
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URI
http://www.med.kobe-u.ac.jp/journal/contents.html
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