81008796

open access

Version of Record

Support for Children under Long-Term Medical Treatment during Transition to School

Bulletin of health sciences Kobe

30

77-98

Graduate School of Health Sciences, Kobe University

2014

2015-04-02

[Purpose] This study aimed at detecting, in an early stage, needs for support and investigating what is required to support children under medical treatment for a long-term and their family appropriately. [Method] The study participants were mothers of children with congenital heart disease, type I diabetes, congenital biliary atresia, juvenile rheumatoid arthritis and occlusive disease in circle of Willis. An anonymous self-report method questionnaire was provided through mail, which included baseline characteristics, school accommodation scale, trait anxiety scale, and concerns during transition to school and consulting situation. Analysis was conducted on 145 participants. [Results] The concerns during of the mothers children’s period of transition to starting elementary school life decreased as they progressed in school, but there was an increase in their mother’s primary concerns, which were related to their children’s friends. The consultation received for these concerns was insufficient. A negative correlation was observed between the child’s school adjustment and the mother’s anxiety. The children’s school adjustment was related to activities of daily life, means of commuting, period of diagnosis and enrolment in support classes. The mother’s anxiety was related to time of the year, grade level, birth order and presence of long-term medical care. [Conclusion] The results indicated the necessity for prioritizing support in school life for first-born children, children in the first grade, those who have a low level of life autonomy and those who require medical care. Insufficient consultation necessitates the need for a system providing ongoing consultation beginning from pre-enrolment and for an opportunity to obtain practical information.

紀要論文